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Black participation low in clinical trials due to lack of access and information

Published December 09, 2013 by OSP

“Over the years our data has begun to show us that, for African Americans, it is not so much that we are afraid, but the biggest reason [for the low rate of participation in clinical trials] is lack of access and information,” according to Patricia Sanders, the director of 50 Hoops, a nonprofit and parent organization of the Coalition to Eliminate Disparities and to Research Inclusion in Clinical Trials project. “There are so many things people don’t know about clinical trials.” Through a variety of means—including text message alerts, dinners and meetings, Sanders has worked to educate African Americans about their diseases and clinical trials. She said 92 percent of CEDRICT’s participants, after they have been educated, said they would be more willing to participate in a clinical trial.

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